Joy

DSC_4985Two years.  Five MRIs.  Three major surgeries.  Three CT scans.  A halo.  A week in traction.  Thirteen months in a brace.    And here we are.

If I had to give one word to describe this past year, it would be joy.  Unusual, right?  We have learned to find joy in each “normal” moment.  We have learned to rejoice as we felt God’s presence through each hard time.

I pray that our lives these past two years have been a blessing.  That we have reflected God’s glory and goodness through the trials and tears.  I continue to pray that Emmie will be a light to those around her.

Last year, I wrote a couple of posts about our super hero never knowing the journey we would take in the second year.  If you’re up for a little read, you can check out “I Know a Fighter.”  It’ll take you to our old blog but it’s still the same ol’ me.  I re-read our thoughts on this marathon and they are still the same as they were last year, too.

May 17th is NF Awareness Month.  We’ll be dressing our best in blue, green, Super Ems shirts, Children’s Tumor Foundation shirts, and blue/green hair (well it’s a bit faded now, but it’s still there).  We’d love to see all of you dressed up too!  Just share away on our Just a Bunch of Characters Facebook page to show support for Super Ems, neurofibromatosis research, and all the children and adult heroes who are waiting for a cure!

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