NF Walk 2017

With this pregnancy and just life happening all around, I haven’t posted much about our NF Walk.  But, regardless, it happened and we all had a blast. Emmie was so excited about the walk that she woke up at 2:30 the morning of, started to get dressed and cried that she was ready to go to the walk when Mark put her back to bed. Ceili Rain continued working on her cake decorating badge by helping with the cake and cupcakes. Ignore my big ol’ pregnancy belly and notice the cool bad/good guys in the background.  These guys were part of the 501st Legion-Georgia Garrison and volunteered their time to dress up in this hot costumes and make all of our kiddos super happy!  They were amazing and we were so excited to have them come…some of them drove up from three hours away to spend the day with us.

Emmie was shy at first and would have nothing to do with them.  She’s more of a clone wars-Ahsoka fan.  But after a while they were able to get her close enough to get a good picture.  During the walk, Mark was holding her when they walked passed the storm troopers and she lifted her head up and shot a quiet “pew” at them and grinned.

Even though the walk is over, we will happily accept donations to our team.  Any and all donations go to Children’s Tumor Foundation which funds research to end neurofibromatosis!  Our team goal is $2500.  We’re over a third of the way there and would love to meet our goal by the end of the year.

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