Super Heroes Unite!

We were so excited when we found out that Atlanta would be the host city for the 2018 NF Forum put on by Children’s Tumor Foundation (CTF).  That’s practically in our backyard (well, sort of).  Of course, we all had to come.  They put a call out for posters to show our NF Heroes journey and Ace and I jumped in brainstorming, sketching, discussing and drawing (all Ace on that last one).  Emmie was thrilled to wear her cape and show off for everyone.   We took up two tables for the welcome dinner!
CTF loves on our kids…all of our kids!
Saturday, Mark and I sat in on meetings and learned a bit more about the research that CTF has helped fund.  We also learned about new treatments and patient initiatives that we are looking forward to getting involved in in the future. Tobin…well, he made friends (several people tried to take off with him and get all his cuddles), ate furniture and in general entertained everyone he saw. After the conference on Saturday, we ate at The Varsity because…well, because we were in Atlanta of course!  I couldn’t resist getting some pictures of our kiddos all matching in their CTF shirts…especially with the Olympic Torch in the background.

Mark’s parents came over for the conference.  Papa echoed our thoughts about CTF.  The organization is top notch.  They have worked to become leaders in research into NF.  Not only that but their innovative way of going through clinical trials has had broad reaches for other disorders and diseases.  We are proud to support Children’s Tumor Foundation and the work they do to help our Super Ems!

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